Participatory Information Management

Medical information management focusing on latest technologies for patient participation

Faculty of Medicine, Heidelberg, University of Heidelberg / Heidelberg University Hospital (UKL-HD)

Patient participation and shared decision making is a highly topical issue in modern medicine: Medical staff must deal with patients who regularly consult Dr. Google, who bring their own measurements generated by M-Health devices and want to understand the background of their treatment. At the same time, new data and knowledge sources are available, artificial intelligence will influence our daily work, results from big data analytics must be interpreted and omics data will lead to precision medicine. Their influence must always be transparent to physicians and patients. Most of the current professionals have undergone an education that did not involve these innovations.

The teaching module on participatory information management utilizes the approach of research-based learning. The learners go through all the steps of the research life cycle: Learners will start by analyzing the current situation for modern participatory technologies such as patient portals. They generate research questions and select scientific methods to answer them. They create a research design and do the research. Results will be presented orally and their work will be critically reflected.

Target Group: The main target group is bachelor’s and master’s students in medical informatics as potential designers of innovative participatory solutions. The target group also includes medical students and practicing physicians since they are the potential users of these systems and should learn how to contribute to their design.

Learning Objectives: Successful learners will be able to deliver applications that support the capture and visualization of patient-generated data. They can prepare medical knowledge in a way that is understandable to laypersons. To enhance scientific skills, learners are enabled to develop research hypotheses, select and apply methods and present their results.

Embedding: Our Medical Informatics program started in 1972 as a joint program of the University of Heidelberg and University of Applied Sciences Heilbronn. It is one of the oldest informatics programs in Germany and one of the oldest medical informatics programs worldwide offering a bachelor and a master program, with a high number of influential alumni who still play a major role in this field.